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Is this negligence?

Updated on October 24, 2019 in Gastric Sleeve Support Groups
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17 on October 14, 2019

Hi,
I had my sleeve operation in june, had a few probs in surgery in that they discovered a hiatus hernia that they repaired at same time. Also as i have kyphosis of my spine the surgery was complicated. In hospital 5 days constantly vomiting. Eventually got home, but at the stage to move onto to solid food i couldnt. Kept throwing up everything i tried to eat, even fluid was giving me bad reflux.
Well im now 4 months post surgery i cant eat any solid food, i live on.milk and yoghurt with the occasional cream cracker.
I even wake up in the night with sick in the back of my throat. Lots of calls to dietician, specialist nurse and seen surgeon, had contrast xray and endoscopy.
Saw one of main surgeons thursday and he told me it was actually a kink in my gastric sleeve. I watched the xray film of the contrast going down and you can see where fluid goes down, gets to the sleeve entrance and comes to a stop before trickling through a tight bit then carries on down. Explains everything.
BUT he said was too soon to operate, that it has been known to happen but can take 3 years to relax down!! I just cried. All he kept saying was “you need to see your actual surgeon: i said how is he going to say anything different, but he kept just saying same thing.
Im weak, tired all the time, tearful, exhausted and fed up trying to eat and cant.
I am seeing my actual surgeon again end november. But it got me thinking, is this something they have done wrong?? Has anyone heard of this happening before.?

Sorry for long post but thought you needed info to be able to advise. X

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Jasmine99 0 on October 15, 2019

I’ve been worried about you and wondering how it was going.  I’m thankful you let us know, but that’s such devastating news you’ve received.  It doesn’t sound like the professionals have been very sensitive or caring.  I’m so sorry this happened.  You don’t deserve this! 

 Negligence is a legal matter, and I couldn’t advise you on U.S. law, let alone UK law (from your wording that’s where I think you’re from, apologies if I’m wrong).  Other than going to see your surgeon and then waiting three years for a fix, did they offer any solutions to adapt to this?  How can you get enough calories, fat, and protein each day?   So you have the kink and it can’t be operated on for three years – where do we go from here?  How do we survive right now?  

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LAT 0 on October 15, 2019

I’m sorry you’re dealing with this!  I think lots of people have problems with nausea and reflux after weight-loss surgery, so maybe the symptoms alone, failed to clue them in.  It’s ridiculous that they didn’t have you come in sooner though.  You also seemed pretty sure that something wasn’t quite right and they should’ve listened.  I sure hope this can be straightened out somehow. 

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Loopy12a 0 on October 15, 2019

Thank you all. Yes im in uk. All he said was take gaviscon and omeprazole. Im ok with drinking milk, or eating yoghurt and soup but anything solid just comes back up. Im weak and tired all the time and feeling pretty depressed. I had a call from the dietician yesterday and she is sending me some meal replacement drinks and jellies that contain a lot of protein and nutrients. She also said if things dont improve very soon i will be admitted back on to be put on a drip and a feeding tube.
Not good so just hoping i can keep down these drinks as i dont want to go back into hospital again.
Thank you for the support. X x

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Mia 4 on October 16, 2019

I add protein powder to my yogurt just to up my numbers and it works out okay.  You might be doing that already.  I hate that you’re going through this, Loopy12a.  About the depression, can you open up to your friends and lean on them?  Now is the time to ask for support if you haven’t reached out already. 

I wonder if the surgeon new about the kink or if it’s something to just happened after you were home.  I would be livid if the surgeon knew there was a problem and just didn’t tell me. The stomach is supposed to stretchy, so you’d think that kink could be fixed.  I wonder if your stomach is able to properly absorb the nutrition you’re eating now.  Continued reflux can have its own consequences down the road so I hope the medicine helps you.  There’s a lot that can wrong with weight-loss surgery, but you never expect that it will happen to you.  At least I didn’t.  

Loopy12a on October 16, 2019

Hi mia, thank you for your support. I dont know if the surgery went wrong or its happened afterwards. I put a complaint in to the patient liason service and they managed to kick butt! Head of diatician team called me and got some high protein jelly and.fortisip shakes along with some other high protein drinks sent to me. Also moving my appointment sooner. She said if i cant tolorate these things i will have to be admitted back in on a drip as getting dehydrated as well as.malnurished. The things all taste horrible but im trying.

What happened to you mia? Have you had problems too?
Jane x x

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Roo on October 16, 2019

I’m glad that someone is standing up for you on the health care side finally! I hear ya about the taste factor.  I figured that something with that many calories would be delicious, but I bought a bunch of gels during a hurricane threat, and they just aren’t tasty at all. I mixed the gels with no sugar added applesauce to make them a little more palatable.  

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Mia on October 17, 2019

Jane, my only real problem now is constipation (TMI, I know).  I’m adding powdered fiber to my meals, but I feel like fiber makes me bloat.  I can handle bloating, but my stomach sure makes crazy noises afterward.  The fiber hasn’t fixed things, so I keep having to resort to laxatives.  I didn’t have this problem before getting sleeved.  I don’t mean to go on about it when I have it relatively good compared to others. Weight-loss surgery was worth it to me because my health was so out of control.  

I’m keeping my fingers crossed that you’ll be able to stay hydrated and reasonably nourished without having to go into the hospital.  

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Loopy12a on October 17, 2019

Hi mia, i know all about bowel problems, ive suffered for years. What works really well for contipation is fibre gel. Its an orange flavour powder you mix with water to make a drink. It will make you go but normally.

https://www.amazon.co.uk/Fybogel-Hi-Fibre-Orange-flavour-sachets/dp/B001RYOP9A/ref=mp_s_a_1_3?keywords=fibre+gel&qid=1571333136&sr=8-3

Hope it helps i know how bad it can make you feel
X x

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Everbloom 1 on October 16, 2019

Do you think those low-calorie sweeteners can help you gulp things down? Then again, maybe even normal sweeteners will do since you can barely get enough food.

To be honest, now I can’t help but feel afraid of the whole process. Not only about the complications, but also about how friendly and helpful my surgeon will be. I’m really sorry this happens to you.

Quill on October 18, 2019

That’s how I’m feeling Everbloom.  I was scheduled for a sleeve procedure, but the closer it got, the more I worried.  It sounds like you’ll either do great and have few complications or you’ll do horribly and suffer the consequences for a lifetime.  I decided to get a lap-band instead, since it’s not  permanent.  I hope that’s the right decision.   I know I have to try something because my obesity is causing so much harm to my health and I’ve been unable to conquer it through diet and exercise.

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Loopy12a 2 on October 17, 2019

I had some more stuff delivered today, it all tasted horrible but trying to get through some of it as dont want to go back,in.
I had the manager of the surgeons call me today with an appointment for next Thursday, so fingers crossed he will actually do something and not fob me off with the “wait and see” approach again.
Will update when i can .x

Mark on October 17, 2019

The wait and see approach might potentially help though.  Since the stomach is so pliable, maybe the kink will work itself out if given time.  Is that a possibility?  I don’t mean to make light of your symptoms.  I haven’t  had surgery yet, and in your shoes I might want the bypass if that’s what it took to make the other stuff better. 

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Loopy12a on October 18, 2019

Hi yes i would prefer it if the option was there to do a by pass but i have to have bowel surgery next year and the surgeon said it would interfere with the other stuff so by pass is not an option.
I dont know what else they can do.

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Quill 0 on October 18, 2019

I hope that the surgeon can help you and that you’ll feel better soon, Loopy12a.  Surely they’ll figure something out.  It’s got to be a stressful time. I wish I could help somehow.  

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Statuegal 0 on October 20, 2019

Having a twist isn’t common, but can happen. Dilation may be all that is needed for it to work itself out.

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HeadOverMeals 0 on October 23, 2019

I hope you’ve been able to keep those gels down and that you’ve gained some more strength.  I’ve got my fingers crossed that this all works out.  You sound incredibly upbeat for someone who is dealing with so many problems after weight-loss surgery.  I appreciate your courage and determination!

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Loopy12a 0 on October 24, 2019

Hi all and thanks for the support.
Ive seen my actual surgeon today and he is organizing a barium xray and then another appointment with him to decided the next step. He said possibly another endoscopy as it maybe something that can be sorted at that time rather than another operation. Failing that he may need to resort to a by pass. I explained that i was told a by pass wasn’t an option but he said if need be he would talk to my bowel surgeon and find a way.
So at least a plan now and the tests have been requested as urgent so hopefully i wont have to wait too long. X x

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